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(3/8/2010) - Next meeting of the Cross Party Group on Psoriasis and Psoriatic Arthritis LTCAS February/March eBulletin |
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(3/8/2010) - Next meeting of the Cross Party Group on Psoriasis and Psoriatic Arthritis The next meeting will take place on Thursday, 16th March from 12.30 - 2pm in TG20-21 |
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(3/8/2010) - NHS Quality Improvement Scotland: Becoming a Public Partner If you have the experience of NHSScotland as a patient, or through caring for a friend or relative, or have a general interest in the health service, you could help with our reviews of healthcare services. http://www.nhshealthquality.org/nhsqis/2136.140.343.html |
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(24/2/2010) - Volunteer Recruitment for NHS NHS Quality Improvement Scotland are seeking volunteers. View Details |
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(14/2/2010) - LTCAS Events http://www.ltcas.org.uk/events.html |
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(14/2/2010) - Stelara Approved SMC approves new medicines in Scotland, In England it`s NICE. Patient charities can send in specific submissions about new drugs which they believe will assist. PSALV sent in a submission re Stelara, also Etrivex. We believe this has assisted Scots patients living with psoriasis, as we need a wide range of options available. http://www.pharmajobs.co.uk/blog/index.php/2010/02/stelara-approved-for-use-in-scotland/ "Around 125,000 people in Scotland suffer from psoriasis, a common condition which is not only painful and unsightly but has a huge impact on how you feel about yourself – it affects your confidence and can sometimes cause depression and anxiety. This is not helped by the fact that psoriasis has a low profile and as such is often misunderstood,” comments Janice Johnson, Co-Founder and Trustee of the Psoriasis Scotland Arthritis Link Volunteers (PSALV). “Some patients who have received STELARA have seen real benefits, so the SMC’s advice for its use in NHS Scotland is a welcome decision.” |
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(25/1/2010) - SIGN to increasingly support implementation http://www.sign.ac.uk/guidelines/implementation.html |
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(9/1/2010) - LTCAS E-Bulletin December 2009 LTCAS E-Bulletin December 2009 |
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(7/1/2010) - ALISS Help Wanted! The ALISS Project is about the challenge of finding information to support you when you are affected by a long term condition. ALISS Leaflet |
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(26/12/2009) - Cold weather misery for arthritis patients Read Story |
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(18/12/2009) - Betesil launched Betesil, a new and efficient way of administering betamethasone valerate, has just been launched and should be available in Scotland in early 2010. It is a gentle, yet effective medicated plaster which releases the betamethasone valerate (a tried and tested treatment that has been widely used for years) slowly over a period of 24 hours to calm down inflamed skin. The active ingredient is in the sticky layer, so any skin in contact with the plaster will get a dose of the medication (corticosteroid). It can be cut to size and is ideal for use on small areas of plaque psoriasis such as the knees and elbows which are usually difficult places to apply cream without it rubbing off on clothes etc |
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(10/12/2009) - Prince Charles: 'Herbal medicine must be regulated' Read Story |
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(10/12/2009) - Minutes of the CPG Disability Minutes of the meeting of the Cross Party Group on Disability Held on 16 September 2009 |
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(1/12/2009) - 'Arthritis risk' for middle-aged exercise addicts Read Story |
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(16/11/2009) - LTCAS Annual Conference and AGM LTCAS Annual Conference and AGM 23 February 2010, Perth Concert Hall Annual_Conference_Information_and_Booking_form.pdf |
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(16/11/2009) - SNP Fringe Photos PSALV are members of the Long Term Conditions Alliance Scotland, and attended the Fringe meeting held in Inverness, 16th of October, here with Shona Robison, Scotlands public health Minister, and Michael Matheson, MSP View Photos |
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(24/10/2009) - Public Meeting At Ramada Jarvis hotel,1pm , Sat. 7th November, Inverness 0131 556 4117 to book places, read more... |
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(24/10/2009) - PSALV On Myspace visit site |
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(24/09/2009) - SIGN Psoriasis and Psoriatic Arthritis Guidelines Diagnosis and Management of Psoriasis and Psoriatic Arthritis in Adults (1.95MB). |
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(24/09/2009) - SIGN Psoriasis and Psoriatic Arthritis Guidelines Diagnosis and Management of Psoriasis and Psoriatic Arthritis in Adults (1.95MB). |
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(19/09/2009) - Responses from PSALV questionnaire 2008 Read Report. |
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(12/09/2009) - Phototherapy Treatment Feedback Wanted NHS Scotland are holding a feedback event on: Friday, 2 October 2009 2:00 pm – 4:00 pm at: Kinnoull Room, Kings Cross Hospital, Dundee Find out more. |
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(11/09/2009) - PSALV Awarded Grant PSALV has been awarded a grant of £8230 to develop a condition specific self management course from the self management fund for Scotland. Full LTCAS self management fund for Scotland press release |
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(3/09/2009) - LTCAS E-Bulletin August 2009 LTCAS_August_ eBulletin.pdf |
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(1/09/2009) - Rhona Cameron to act as PSALV patron Scots commedienne and celebrity Rhona Cameron has agreed to act as a patron for Psoriasis Scotland, we are delighted, her mum Jean has had severe psoriasis for many years. Rhona attended two events at Holyrood with us. We look forward to an interview which she has promised us. |
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(25/08/2009) - LTCAS Focus Group 8th September A manifesto for people living with long term conditions. Find out more. |
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(18/08/2009) - New scalp gel approved for use in Scotland Scottish Medicines Consortium Minutes of the SMC Meeting held on Tuesday 07 July 2009 |
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(17/07/2009) - SIGN Psoriasis National Meeting SIGN National Meeting on Atopic Eczema and Psoriasis and Psoriatic Arthritis taking place on Thursday 1st October 2009. programme and registration form |
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(12/07/2009) - New SIGN guidelines National Open Meeting to discuss the draft guidelines on ATOPIC ECZEMA and PSORIASIS AND PSORIATIC ARTHRITIS. Janice, our director with ps/PsA Will be speaking as one patient rep who has been involved with the setting up of this guideline. Find out more |
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(1/07/2009) - A manifesto for people living with long term condition Work is beginning on an LTCAS manifesto, we are members of LTCAS and you can take part in, and influence policy here. Find out more |
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(17/06/2009) - Long Term Conditions Action Plan The Scottish Government has published 'Improving Health and Wellbeing of People with Long Term Conditions in Scotland: A National Action Plan'. You can view this at http://www.show.scot.nhs.uk/publications/details.asp?PublicationID=2980 LTCAS will be producing a response to the plan and we want to know what you think. |
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| (4/06/2009) - Parliamentary Dinner |
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PSORIASIS SCOTLAND - PSALV held a very successful parliamentary Working
dinner last week.
Read full story |
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(2/06/2009) - PsoriasisPatients.com PsoriasisPatients.com is a recently launched global social networking support website for people with psoriasis and psoriatic arthritis. |
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(2/06/2009) - Xamiol We are sending in a patient submission re Xamiol, BRAND new med for scalp pso from LEO-GEL formulation of Dovobet for scalp. would anyone like to help this-going to SMC-By writing a few lines about the efect of scalp psoriasis on them, and the problems . it needn`t be much, and you would not be publicised at all. You can ask GP now for this, although not through SMC, it is available. |
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(2/06/2009) - SIGN Awareness Volunteers Would you like to volunteer to work with SIGN to help them to get the latest up-to-date evidence based health information to patients, carers and members of the public? SIGN_Awareness_Volunteer.doc SIGN_AV_application.doc |
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(2/06/2009) - Donation Psalv Member Joyce Sleigh recently obtained a donation of £500 from the Clydesdale Bank. We would like to acknowledge and thank her and the Clydesdale Bank for such a generous donation. |
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(2/06/2009) - Psoriasis: The Naked Truth Psoriasis: The Naked Truth is pan-European educational programme to raise awareness of the physical and emotional impact of psoriasis. The centrepiece of Psoriasis: The Naked Truth programme is a photo exhibit that captures the experience of living with psoriasis through photography and personal stories. Visit 'The Naked Truth' website |
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(25/04/2009) - SIGN Work Programme View the SIGN work programme: view SIGN Work Programme |
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(5/04/2009) - Lower prescription charges in Scotland will help arthritis patients Charges for prescription drugs have been further reduced in Scotland, making treatment less expensive for people with long-term conditions like arthritis. Full Story |
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(29/03/2009) - Dr. Iain McInnes Dr. Iain McInnes is a professor of Experimental Medicine and Rheumatology, Immunology, Infection and Inflammation Division, University of Glasgow. The West of Scotland is rapidly becoming known as one of the top centres for research into inflammatory diseases, and Professor Iain McInnes is one of the area's leading scientists responsible for that reputation. http://www.nexxusscotland.com/life_science/case_studies/people/mcinnes_iain |
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(23/03/2009) - Holyrood Patients Rights Conference We have been offered 3 places at the Holyrood Patients Rights Conference, taking place at The Sheraton Grand Hotel in Edinburgh on 31st March 2009. If anyone is interested please contact us ASAP. The Key Issues under discussion will be: What will the upcoming Patient’s Rights legislation look like? How will it change practice for clinicians and boards? How will it contribute to the vision of a mutual NHS? What have we learned from other countries about patient’s rights? What are the implications for health and safety regulations and practices? What will the impact be on privacy rights? How best do we listen to patients about their view and needs? |
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(19/03/2009) - LTCAS E-Bulletin, February 2009 http://www.ltcas.org.uk/index.php?id=69 |
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(13/03/2009) - Taxi Accessibility Consultation Workshop Edinburgh, 31 March 2009 DfT_Cosultation_on_improving_access to_taxis_(full version)_Feb_09.pdf Dft_consultation_on_improving_access_to_taxis_(excluding_annexes)_Feb_09.pdf Event_agenda_Edinburgh.pdf Taxi_Accessibility_Consultation_Workshop _Edinburgh_31_March_2009.pdf |
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(12/03/2009) - Final vote on Health Boards Bill People in Scotland could have a say in the running of their local health board under Scottish Government plans up for a final Parliamentary vote today. http://www.scotland.gov.uk/News/Releases/2009/03/11143239 |
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(21/2/2009) - Efalizumab withdrawn The European Medicines Agency has completed a review of efalizumab (Raptiva) after concerns about its safety. The Agency’s Committee for Medicinal Products for Human Use (CHMP) has concluded that the benefits of efalizumab do not outweigh its risks, and they recommend that the marketing authorisation should be suspended across the EU. Efalizumab is used to treat adults with moderate to severe chronic plaque psoriasis who have not responded to, or who are unable to take, other treatments for this disease. This medicine was reviewed after reports of serious side effects, including three confirmed cases of progressive multifocal leukoencephalopathy (PML, a severely disabling or fatal disease of the central nervous system) in patients who had received efalizumab for more than 3 years; two of these patients died. Further information, including a question and answer sheet, is available on the European Medicine Agency’s website at http://www.emea.europa.eu/ |