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(1/07/2009) - A manifesto for people living with long term condition Work is beginning on an LTCAS manifesto, we are members of LTCAS and you can take part in, and influence policy here. Find out more |
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(17/06/2009) - Long Term Conditions Action Plan The Scottish Government has published 'Improving Health and Wellbeing of People with Long Term Conditions in Scotland: A National Action Plan'. You can view this at http://www.show.scot.nhs.uk/publications/details.asp?PublicationID=2980 LTCAS will be producing a response to the plan and we want to know what you think. |
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| (4/06/2009) - Parliamentary Dinner |
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PSORIASIS SCOTLAND - PSALV held a very successful parliamentary Working
dinner last week.
Read full story |
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(2/06/2009) - PsoriasisPatients.com PsoriasisPatients.com is a recently launched global social networking support website for people with psoriasis and psoriatic arthritis. |
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(2/06/2009) - Xamiol We are sending in a patient submission re Xamiol, BRAND new med for scalp pso from LEO-GEL formulation of Dovobet for scalp. would anyone like to help this-going to SMC-By writing a few lines about the efect of scalp psoriasis on them, and the problems . it needn`t be much, and you would not be publicised at all. You can ask GP now for this, although not through SMC, it is available. |
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(2/06/2009) - SIGN Awareness Volunteers Would you like to volunteer to work with SIGN to help them to get the latest up-to-date evidence based health information to patients, carers and members of the public? SIGN_Awareness_Volunteer.doc SIGN_AV_application.doc |
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(2/06/2009) - Donation Psalv Member Joyce Sleigh recently obtained a donation of £500 from the Clydesdale Bank. We would like to acknowledge and thank her and the Clydesdale Bank for such a generous donation. |
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(2/06/2009) - Psoriasis: The Naked Truth Psoriasis: The Naked Truth is pan-European educational programme to raise awareness of the physical and emotional impact of psoriasis. The centrepiece of Psoriasis: The Naked Truth programme is a photo exhibit that captures the experience of living with psoriasis through photography and personal stories. Visit 'The Naked Truth' website |
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(25/04/2009) - SIGN Work Programme View the SIGN work programme: view SIGN Work Programme |
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(5/04/2009) - Lower prescription charges in Scotland will help arthritis patients Charges for prescription drugs have been further reduced in Scotland, making treatment less expensive for people with long-term conditions like arthritis. Full Story |
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(29/03/2009) - Dr. Iain McInnes Dr. Iain McInnes is a professor of Experimental Medicine and Rheumatology, Immunology, Infection and Inflammation Division, University of Glasgow. The West of Scotland is rapidly becoming known as one of the top centres for research into inflammatory diseases, and Professor Iain McInnes is one of the area's leading scientists responsible for that reputation. http://www.nexxusscotland.com/life_science/case_studies/people/mcinnes_iain |
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(23/03/2009) - Holyrood Patients Rights Conference We have been offered 3 places at the Holyrood Patients Rights Conference, taking place at The Sheraton Grand Hotel in Edinburgh on 31st March 2009. If anyone is interested please contact us ASAP. The Key Issues under discussion will be: What will the upcoming Patient’s Rights legislation look like? How will it change practice for clinicians and boards? How will it contribute to the vision of a mutual NHS? What have we learned from other countries about patient’s rights? What are the implications for health and safety regulations and practices? What will the impact be on privacy rights? How best do we listen to patients about their view and needs? |
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(19/03/2009) - LTCAS E-Bulletin, February 2009 http://www.ltcas.org.uk/index.php?id=69 |
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(13/03/2009) - Taxi Accessibility Consultation Workshop Edinburgh, 31 March 2009 DfT_Cosultation_on_improving_access to_taxis_(full version)_Feb_09.pdf Dft_consultation_on_improving_access_to_taxis_(excluding_annexes)_Feb_09.pdf Event_agenda_Edinburgh.pdf Taxi_Accessibility_Consultation_Workshop _Edinburgh_31_March_2009.pdf |
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(12/03/2009) - Final vote on Health Boards Bill People in Scotland could have a say in the running of their local health board under Scottish Government plans up for a final Parliamentary vote today. http://www.scotland.gov.uk/News/Releases/2009/03/11143239 |
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(21/2/2009) - Efalizumab withdrawn The European Medicines Agency has completed a review of efalizumab (Raptiva) after concerns about its safety. The Agency’s Committee for Medicinal Products for Human Use (CHMP) has concluded that the benefits of efalizumab do not outweigh its risks, and they recommend that the marketing authorisation should be suspended across the EU. Efalizumab is used to treat adults with moderate to severe chronic plaque psoriasis who have not responded to, or who are unable to take, other treatments for this disease. This medicine was reviewed after reports of serious side effects, including three confirmed cases of progressive multifocal leukoencephalopathy (PML, a severely disabling or fatal disease of the central nervous system) in patients who had received efalizumab for more than 3 years; two of these patients died. Further information, including a question and answer sheet, is available on the European Medicine Agency’s website at http://www.emea.europa.eu/ |