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(16/8/2010) - LTCAS Events Two joint Scottish Government/Long Term Conditions Alliance Scotland events to help identify the emotional and psychological support needs of people with long term conditions. INVITATION _LETTER.pdf flyer_new2.pdf |
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(16/8/2010) - Phil Mickelson: Psoriatic Arthritis Diagnosed at Mayo Clinic Bitten and Bound video Guardian Report Medicinenet Report |
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(3/8/2010) - Free PGA supervised golf training The SDGP will host its third PGA supervised golf training and tuition day of 2010, at the Wellsgreen Golf Academy on Sunday 5 September and anyone with a serious health issue, mobility problem or disability and their coaches may attend. To enter, please complete the entry form below and return it to the address shown. Application form |
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(3/8/2010) - SIGN guideline on psoriasis and psoriatic arthritis Input wanted |
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(3/8/2010) - LTCAS - IBR Letter to the Scotsman Read the letter |
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(3/8/2010) - Drinking alcohol can 'reduce severity' of arthritis Drinking alcohol can not only ease the symptoms of rheumatoid arthritis it appears to reduce disease severity too, research suggests. Read full story |
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(23/7/2010) - Treatment of their psoriasis or psoriatic arthritis study Robert Gordon University is carrying out a study of the views of patients regarding the treatment of their psoriasis or psoriatic arthritis, across all healthcare settings such as their GP or out-patient care. It is hoped that this may help to inform new Guidelines due for publication this year. psoriasis-study-Glasgow psoriasis-study-Aberdeen |
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(29/6/2010) - Quality of life for young people with long term conditions LTCAS is working with for Scotland's Disabled Children (fSDC) to gather the views and experiences of children and young people living with a disability and/or long term condition. The research will be conducted through an online survey and also focus groups. Take the survey |
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(29/6/2010) - Call for Evidence The Equality and Human Rights Commission is looking to hear from anyone who has been bullied or harassed and from organisations that work for/with disabled people, including voluntary and community sector organisations, public authorities (such as local councils, police, housing, social services and education) and public transport operators. Find out more |
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(1/6/2010) - Arthritis Care’s survey Arthritis Care’s survey indicates that pain is having a serious impact on the everyday lives of people in the UK who have arthritis. The survey of over 2,000 people with arthritis shows that pain is frequently preventing people from carrying out typical daily activities, such as making a cup of tea, going to the shops or even hugging a loved one. It reveals that 63% of people with arthritis find it difficult to have sex when their pain is at its worst. 36% of respondents said pain actually prevents them from having intimate relationships. With over half of respondents (57%) saying that their pain would have to be ‘unbearable’ for them to seek help from their doctor or specialist, Arthritis Care is concerned that millions of people are unnecessarily ‘suffering in silence’. The charity is calling on people to seek early support before pain takes over their lives. Be one of the first to see the full report by following the link or visiting their website: http://www.arthritiscare.org.uk/GetInvolved/ArthritisCareWeek2010/ArthritisHurts |
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(28/5/2010) - New PSALV Supporter! Welcome to the world Sophie Burns, born 28th May! |
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(14/5/2010) - Psoriasis Documentary Be part of a new documentary on the lives of those with psoriasis. We are involved in the creation of a new documentary series called Under the Spotlight, to raise awareness of the impact of psoriasis on a person’s life over time and reach out to others who may be going through similar experiences. The series will be viewed online by the general public and healthcare professionals. The documentary will follow people with psoriasis over a number of years, through a series of short film recordings, to highlight key events in their life. There is no obligation to make any commitment at this stage but if you would like to be filmed as part of these series, please contact Janice at the Psoriasis Association on 0131 556 4117 or by email at janice.johnson5@btinternet.com. The Psoriasis Uncovered documentary is being supported by Abbott UK and presented by Psoriasis Scotland. |
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(12/5/2010) - Skin Information Day – Glasgow 22nd May 2010 Skin Information Day – Glasgow 22nd May 2010 Programme |
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(12/5/2010) - Lack Of UnderStanding Large-scale international internet questionnaire study about understanding and lack of understanding for rheumatic diseases, recently started in the Netherlands at Utrecht University . Patients with rheumatic diseases report that lack of understanding for their illness is an important issue in their lives. We call this lack of understanding by others ‘invalidation’. The aim of our study is to examine how much understanding and invalidation by others is experienced by people who have a rheumatic disease. We also want to examine the consequences of this understanding or invalidation. We would like to compare this between different countries. Patients with any rheumatic disease can fill out a questionnaire on the internet in their own language, which will take approximately 20 minutes. Participation will be voluntary and anonymous. Take Part! |
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(12/5/2010) - Herbal therapists face regulation crackdown The government has announced plans to force all providers of unlicensed herbal medicines to register with a regulator. View Full Story |
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(12/5/2010) - Next meeting of the Cross Party Group on Psoriasis and Psoriatic Arthritis The next meeting will take place on Tuesday, 8th June 12.30 for 12.45 - 14.00 in TG 20/21 View full schedule of meetings |
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(12/5/2010) - Legal guarantee to be given for treatment waiting times Patients will be legally guaranteed hospital treatment within 12 weeks under new legislation which has been unveiled by the Scottish government. View Full Story |
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(15/3/2010) - Do you to learn more about managing your Psoriasis and psoriatic arthritis?” Come and take part in the first ever, free “Self Management“ course on these disabling conditions, which starts on evening of 24th March in Glasgow. Read Full Details The course will be held at the LTCAS, Venlaw building, 349 Bath Street, in Glasgow, every Wednesdsay evening 6.30pm to 8.30pm, starting 24th March for 6 weeks. Refreshments provided. The course is free and travel expenses will be covered. |
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(3/8/2010) - LCTAS eBulletin Feb/March 2010 LTCAS February/March eBulletin |
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(3/8/2010) - Next meeting of the Cross Party Group on Psoriasis and Psoriatic Arthritis The next meeting will take place on Thursday, 16th March from 12.30 - 2pm in TG20-21 |
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(3/8/2010) - NHS Quality Improvement Scotland: Becoming a Public Partner If you have the experience of NHSScotland as a patient, or through caring for a friend or relative, or have a general interest in the health service, you could help with our reviews of healthcare services. http://www.nhshealthquality.org/nhsqis/2136.140.343.html |
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(24/2/2010) - Volunteer Recruitment for NHS NHS Quality Improvement Scotland are seeking volunteers. View Details |
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(14/2/2010) - LTCAS Events http://www.ltcas.org.uk/events.html |
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(14/2/2010) - Stelara Approved SMC approves new medicines in Scotland, In England it`s NICE. Patient charities can send in specific submissions about new drugs which they believe will assist. PSALV sent in a submission re Stelara, also Etrivex. We believe this has assisted Scots patients living with psoriasis, as we need a wide range of options available. http://www.pharmajobs.co.uk/blog/index.php/2010/02/stelara-approved-for-use-in-scotland/ "Around 125,000 people in Scotland suffer from psoriasis, a common condition which is not only painful and unsightly but has a huge impact on how you feel about yourself – it affects your confidence and can sometimes cause depression and anxiety. This is not helped by the fact that psoriasis has a low profile and as such is often misunderstood,” comments Janice Johnson, Co-Founder and Trustee of the Psoriasis Scotland Arthritis Link Volunteers (PSALV). “Some patients who have received STELARA have seen real benefits, so the SMC’s advice for its use in NHS Scotland is a welcome decision.” |
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(25/1/2010) - SIGN to increasingly support implementation http://www.sign.ac.uk/guidelines/implementation.html |
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(9/1/2010) - LTCAS E-Bulletin December 2009 LTCAS E-Bulletin December 2009 |
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(7/1/2010) - ALISS Help Wanted! The ALISS Project is about the challenge of finding information to support you when you are affected by a long term condition. ALISS Leaflet |